Target Lesion update

When we to the doctor last Thursday we saw the doctor on call, Dr. Irwin, who was pregnant. We went back in Friday morning for the lab tech to draw the girls blood; we were told the results should be in on Monday. On Wednesday this week when I hadn't heard anything I called the office. They informed me that Dr. Irwin went into labor on Sunday therefore they turned the results over to our doctor, Dr. Stanford, who was not in on that day. So today after making some phone calls, I finally talked directly with Dr. Stanford. He told me that the lab ran the wrong test, not the test requested, which means we have to go through the blood drawing process again. He did tell me that most likely we will not be able to find the cause of the lesion rash, meaning that Dr. Stanford has to honor the directions from the infectious disease doctor and not give my girls any more Synagis shots. I asked what precautions that meant since we are already staying in the house except going to my parents, Ben's parents and Sunday morning church. He said pull them from church until the end of RSV season which is the end of March. He also said keep all children away and any adults that are sick in any way. He said the girls are considered very high risk babies and they can not get RSV or it won't be good, which I have already been told by the NICU at Baptist hospital. Dr. Stanford does want to go ahead and have the girls blood drawn again possibly at Childrens Hospital, so that they can run the correct microplasma test to see if there is a chance that caused the rash. Please keep praying that we can find the cause but mostly that my girls will stay healthy through all this. I will keep you updated on what we find out hopefully next week.

First Thanksgiving

We had a great Thanksgiving, and it was even more special because we had lots to be thankful for. Our Lord blessed us this year with our precious baby girls. It was Lexyn and Brittyn's first Thanksgiving, and I think they had a good one, that is until Brittyn started running 100.2 degree fever. We had Thanksgiving with my family at our house for lunch. It was nice because that was nap time for the girls, so they hit the bed right as we pulled the turkey out. How convenient! My mom, dad, sister and niece came over. Brinlee took a nap at lunch too. When she got up I had a great time playing with her. She is so cute and funny, I might say she is a little sassy now too. After my family left at 4:00 we headed in to Ben's parents house to be with his parents, sister, and our future brother in-law. We had a good time there. Of course we are still suffering today from eating so much. We had to keep the company small because the girls aren't really suppose to be out and around many people, so we missed the huge Brown family dinner at Ben's Papaw and Nanny's house, but they all understood. I had my camera out all day but of course with 2 little one's I was a little busy and didn't think to take any pictures of the girls with family. I did manage to snap a few shots when we got home that night before their bath. They were wearing a really cute outfit that my mom, Gamma, got the girls. It actually was very suitable for the day. It was pink footed overalls that said "Thank Heaven for Little Girls", then the booty said "Heavenly sent". Very true!

Ben and I were just thinking back to this time last year. What a neat thing to think about. Last year 3 days before Thanksgiving we were doing IVF and the doctors did the egg retrieval; 2 days after Thanksgiving they did the embryo transfer. Man, how much our year has changed, obviously for the better. We are definitely THANKFUL!

Roll-over #2 and Target Lesions

Today was a big day for Lexyn. She rolled over from her back to her tummy for the first time this morning, since then she has done it about 10 times. She also decided to unfold her tight arms and reach for her toy that is attached to her car seat. Not only did she grab it once but she grabbed many times and even pulled hard enough to make it sing. YEAH LEXYN!!!! Today daddy got off work at 12:00 so he was able to see the girls in good moods and catch them both roll over. Since we are on hibernation, we can't get the girls out but we didn't want to stay at home so we loaded up in the car during nap time and drove for 3 hours. We went up to Homnoke, AR where Ben will be duck hunting tomorrow. He wanted to see if there were any ducks. It was actually nice and I really enjoyed being out of the house and being with my family.

This past Tuesday a therapist from Kidsource came to evaluate the girls for developmental therapy. A lot of the time preemies need therapy to catch them up. Both of my girls qualified for the state to pay for an hour a week because their muscle tone is high, which is the reason they are so tight. Lexyn is more so than Brittyn obviously because she very rarely stretches her arms and legs out but the therapist said they both need the help. She showed me some stuff to do with them during the days and it must be working for Lexyn. She is doing so good. The therapist said most likely the girls will fuss and cry while we do the stretches but she said it is just uncomfortable it isn't hurting them. Well, my girls don't fuss in fact they laugh the whole time. It is the funniest thing.

I said earlier this week how we went to get synagis shots on Monday; well Tuesday afternoon I started noticing some red ring rash on Brittyn's legs, then I noticed a few on Lexyn's legs. I called the doctor and was told to just watch them and to rub the rash with a warm wet washcloth for several days and it will go away. Wednesday night Brittyn started running 100.8 degree fever. I gave them both Tylenol and kept watching them through the night. By this time she was covered from head to toe. So Thursday we went to the doctor and had a very stressful visit. The doctor said they were target lesions and informed us that majority of babies have no reaction to the synagis shot. She called NICU at Children's to see if they had seen it with the shot and they ended up referring her to call the infectious disease doctor. In the mean time the nurse came in and drew blood out of Brittyn's arm to run CBC test. After sticking her and digging around for a minute or so she finally got enough blood. The doctor then came in and said that the infectious disease doctor recommended she test for microplasma. He said if that test comes back negative, without running a million other blood tests, we won't know what caused the target lesions; therefore they can't rule out the synagis shot so the girls won't be able to get anymore. I asked if we would be able to try it one more month to see if they react since we had the shots in October and had no reaction. She told me no, because a lot of times the reaction is worse the next time. So the nurse came back in to draw blood on both girls to run the Microplasma test. After sticking each girl in both arms and digging around, she got nothing. I felt a little sorry for her that she couldn't get the vein but I was more mad because my girls were screaming and kicking while she dug around in their arms. I have had a nurse do that to me and I was able to say stop, but my poor babies were helpless. When we finally left the office, after the nurse gave up, at 5:30 I was in tears for the pain my babies went through. Today we went back to the doctor, for lab only, to see the best nurse in the clinic. Thank God she got blood on both girls on the first stick and didn't dig around. We should hear the results on Monday. If they come back positive, the girls will be treated with antibiotics and we can continue to receive the synagis shot, which allows us to get out to go to church. If the test comes back negative we will not be able to receive any more synagis shots which will mean the girls will not be able to leave the house at all except possibly to go to see grandparents. Please pray for us!

Synagis, rolling over, and the big #3 - What a big day!

Today I took the girls to the doctor to get their 2nd month of the synagis shot. The dose is based on their weight so we undressed them to get an accurate weight. With a wet diaper on, I know I am a bad mommy letting them wear wet diapers, Brittyn weighed 10 pounds 5.9 ounces, and Lexyn weighed 10 pounds 2.4 ounces. My girls are 10 pounds now, I can't believe it. While they were laying on the table awaiting their shots, Brittyn rolled over from her back to her belly for the first time. She did it in front of her Nana, me and the nurse. Of course we all screamed and cheered real loud. I, of course, got tears in my eyes. My babies are getting too big. Life does sure fly by when you are having the time of your life! I had been watching her all morning because she was getting up on her side she just couldn't seem to get her arms to cooperate. Who would have ever known she would have done it on a cold uncomfortable little doctor's office table. This afternoon she did it at home on the floor 3 more times, daddy still hasn't been in the room at the right time to catch it.



Today is also my precious niece's 3rd Birthday. She is getting so big. It seems just a few months ago that I was rushing to Fayetteville to be there for her arrival. Now she is talking your ear off and running the show. I got to spend 5 hours today watching her, my girls were napping for most of the time so we played together. She begs for "my prissy" to play. Since I was taking her back to her dad tonight I didn't really care what she did. She didn't want to take a nap so of course the cool aunt didn't make her, she wanted candy so not only did we have 1 piece but we had 10 pieces. At 4:30 she crawled up in my lap with her ducky, blanky, passy ( I know, what is a 3 yr old doing with a passy), and her "dink". She claimed she was cold so we covered up and watched "Spon bob". She quickly fell asleep. Of course we had to leave at 4:50 so it was a cat nap but I enjoyed snuggling with her. She was my first angel!

Catch up!

I haven't posted in a few weeks. Life has been busy but slow if that makes any since. We are still hibernating therefore I have started leaving the girls with family a few times so I can get out. It makes me sad and anxious to leave them but I make it through the time away and love their smiles when I come home and pick them up. They love mommy, and mommy loves them!

On November 7th Lexyn sat in the excersaucer for the first time. She hates tummy time but we still have to do it to strengthen her neck. That day I got tired of hearing her scream while she was on her tummy and decided to try putting her in the excersaucer to see if she would work on holding her head up that way. It worked and it occupied her for about 10 minutes.

On Saturday the 8th Brinlee, my precious niece, was at my mom's house, so I took my girls over there and everyone used hand sanitizer so they wouldn't spread any germs. Brinlee is the only kid that is around my girls right now since we are hibernating but my baby girls are "her babies" so we just couldn't stay away from her for 5 months. She loves her "wexyn, and Brinnyn". She likes to push Brittyn around the house in her baby doll stroller. Brittyn really doesn't mind it as long as she is moving.

Brinlee is a great big cousin and comforts them when they are crying.

On November 5th Brittyn started chewing on her hand and then it led to anything that came within reach. She started drooling on the 9th. We think she is starting to teethe but I am sure it will still be a few months for that first tooth to come. For now, we are chewing our hands off, and wearing spit soaked onsies!

November 2, 2008 = 5 months for Lexyn and Brittyn

Time is sure flying by. It is crazy how when I was pregnant it took years for the 6 and half months to come before I delivered my sweet babies, but now that they are here and home with us if I blink I may miss a few days! They are definitely precious miracles, God really blessed us. They weigh 9 and half pounds and are cooing all the time. They are realizing that each other are there now, Brittyn grabs Lexyn anytime she is near and they smile at each other and now they are even cooing to each other. It is so sweet. They still only take about 3 ounces every 4-5 hours, but they are starting to sleep longer through the night. They are all smiles most of the time, although Lexyn is still a little rotten and I am not sure how!!!

Trick-or-Treat

My girls were the cutest Ladybugs on Halloween. They looked like they should be on the Anne Gaddes calenders. We had a good time. My mom and sister came to our house and we handed out candy to all the trick-or-treaters in our neighborhood, which is probably close to a thousand kids. We ran out of 10 pounds of candy in an hour. At 7:15 our $25 worth of candy was gone. At 8:00 we went to Ben's parents house to show off our ladybugs and hang out with friends and family. We roasted marshmellows and made smores over the firepit. We laughed at stories and costumes. It was fun. Finally at 10:30 we decided to take our little ladybugs to the house. We made it a late night since it was our last time to hang out away from the house, because November 1st was a night away.

Weight Checks

The girls doctor appointment on Wednesday the 29th was ok. The pediatrician didn't get on to me as much for their weight but he still says Lexyn needs to intake more calories which means more 24 calorie formula. Lexyn weighed 9 pounds 7.4 ounces which was a gain of 8 ounces in 15 days which he said wasn't bad. Brittyn weighed 9 pounds 8.6 ounces which was a gain of 9 ounces in 15 days. He wants me to wake Lexyn up in the middle of the night to get an extra bottle in but after trying it once, she has no desire to eat when she is woke up. He put Brittyn back on a reflux medicine since she is spitting up a lot in the middle of nap time and nighttime. He did clear us so we don't go back until their 6 month check up on December 2nd.

Brittyn sat in the excersaucer for the first time on Thursday. She is still small and can't grab toys yet but she was so excited to see the bright new toys surrounding her. You could see the wheels turning in her brain as she tried to grab a toy, she did end up succeeding once. Only one foot could touch the bottom so she would push up with that one foot and spin herself around. She loved it.